Distributed for University of British Columbia Press
Wayfinding Disability
On Chronic Illness and Identity
Disrupts conventional expectations of illness narratives to offer instead a study of chronic illness that is both uniquely personal and deeply researched.
Wayfinding Disability reveals how chronic illness might be best understood as a dissonant disability: a state of being simultaneously well and unwell, between remission and relapse. Biomedical definitions do not adequately give voice to the intensity of living with unrelenting bodily uncertainty, or to how this affects identity formation. Emilia Nielsen addresses that gap with a focus on living with chronic illness as a means of imparting experiential knowledge that intersects queerness and disability.
While examining scholarly literature, Nielsen became simultaneously engaged in writing her own narrative, a critical autobiography. The result weaves together creative nonfiction, autofiction, poetry, and deft scholarship to theorize chronic illness both objectively and subjectively, to make our understanding of disability whole.