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Distributed for University of British Columbia Press

Unmothering Autism

Ethical Disruptions and Affirming Care

Centers the previously marginalized perspectives of mothers and autistic individuals to affirm their knowledge of living well together in, and through, differences.

As global rates of autism diagnosis rise, dominant cultural representations continue to define autism as a tragic neurological disorder. As primary caregivers and advocates, mothers are centrally implicated in the impulse to find both cause and cure. 

Unmothering Autism emerged from Patty Douglas’s desire to understand a contradiction: she and her two sons, one who identifies as autistic, experienced beauty living together, while their public encounters with doctors, school professionals, and agencies were fraught and sometimes violent. In this book, Douglas offers a critical history of popular and biomedical assumptions about autism, expressed through shifting social constructs that blame or valorize maternal care. She also intersperses her own insights throughout and shares conversations she has had with other “autism mothers.”

This book theorizes an “ethics of disruption,” reorienting us to autism and autistic people as valuable and fundamentally human. 

Reviews

"Unmothering Autism is articulate and theoretically sophisticated while still grappling with a very important and impactful issue: care."

Majia Nadesan, professor, Disability Studies, Arizona State University

"Patty Douglas’s book fundamentally challenges the dominant narrative about mothering an autistic child found in both the popular media and caretaker autobiographies, and replaces it with a more nuanced understanding of how mothers contest both traditional role expectations and disabling views of autism."

Kristin Bumiller, professor, Political Science, Amherst College

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